Harper's Hope
Harper is sparky 6 year who will soon be graduating from Kindergarten and making her way into first grade. She was tested for Cystic Fibrosis through a sweat test at two weeks old and diagnosed at five weeks. It was also confirmed that Harper was pancreas insufficient (PI). Being pancreas insufficient is common for those who have the double DeltaF508 mutation. This meaning, her pancreas does not release enough enzymes to digest the fats, proteins and most carbohydrates. Because of this, Harper has been taking a medication called Creon since she was five weeks old. Creon is a medication that replaces enzymes that her pancreas lacks to produce. We have had very few set backs related to CF throughout Harper's life and we are immensely grateful for that. With Harper having the DDF508 mutation, she was approved for a medication called Trikafta. Trikafta treats the mutation causing Cystic Fibrosis. It not only improves symptoms but slows down the progression of the disease overall. It has been a breakthrough for people with Cystic Fibrosis, allowing them to plan on living longer and to participate in life more fully.
The hope that we have for Harper to live not just a full life but one with health is rooted in the work that the Cystic Fibrosis Foundation is doing. The C.F.F. is the driving force behind the life-saving research and medications. With the money that is raised by such events as this, it helps further research and allows families that are affected by this disease to have continued access to treatments, medications and medical professionals. We are encouraged by all the progress and advances in the research of Cystic Fibrosis and hope that one day a cure is found!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
The hope that we have for Harper to live not just a full life but one with health is rooted in the work that the Cystic Fibrosis Foundation is doing. The C.F.F. is the driving force behind the life-saving research and medications. With the money that is raised by such events as this, it helps further research and allows families that are affected by this disease to have continued access to treatments, medications and medical professionals. We are encouraged by all the progress and advances in the research of Cystic Fibrosis and hope that one day a cure is found!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
APR
23
23
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