Sammy's Steppers
For anyone who is new here, let me tell you what this is all about. This is Sam and he was diagnosed with Cystic Fibrosis when he was three weeks old. CF is a progressive, genetic disease that affects the lungs, pancreas, and other organs. People with CF can have a variety of symptoms, including: Very salty-tasting skin, persistent coughing, frequent lung infections, wheezing or shortness of breath, poor growth or weight gain in spite of a good appetite, difficulty with bowel movements, and nasal polyps. All of which Sam either currently deals with or has dealt with in his lifetime. Sam takes over eight hundred pills per month and spends over an hour each day doing treatments. We recently had to add keeping track of his blood sugar to his daily regiment, too. He goes for check-ups at LeBonheur every theee months and has done that since he was born. Their CF team is amazing and we love them all so much.
Sam is thirteen years old and attends Houston Middle School. He loves choir and theater!!! He actually just played Price Eric in the school play, The Little Mermaid. He will be taking advanced choir next year and is stoked. He loves staying after school for Chess club and he is also a member of the BETA club. He is ridiculously good at any video game he picks up. He actually is really good at everything he tries. He is always singing, dancing, beat boxing or telling jokes. He is always the life of the party. ALWAYS!
Despite the challenges he faces daily, he always has a good attitude and never lets CF keep him from reaching for the stars. Although advocating and educating are our main goals here, it definitely doesn’t hurt to try and raise some money for our cause, too. Through money raised, the foundation is able to help support major break throughs for every one with CF. Sam is living proof of how life-changing these medications can be. Sam started Trikafta in July of 2021 and it changed our little world. The dramatic decrease of hospital admissions, the coughing not being 24/7, the weight gain. It’s amazing. It improved his quality of life. Even though this is amazing for Sam and other kids that can be on this medicine, there are still soooo many people with CF that don’t have a drug like this available for them yet.
This is why we advocate. This is why we educate. This is why we raise money. This is why we have awareness walks. This is why we make t-shirts. It’s all for them and it’s all in hopes that one day CF will stand for Cure Found. Thank you so much to everyone who shares these posts and who helps us raise awareness. From the bottom of my heart, I appreciate you so much. To the world, he may just be another kid but to me, he is my world. Together we can!
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Sam is thirteen years old and attends Houston Middle School. He loves choir and theater!!! He actually just played Price Eric in the school play, The Little Mermaid. He will be taking advanced choir next year and is stoked. He loves staying after school for Chess club and he is also a member of the BETA club. He is ridiculously good at any video game he picks up. He actually is really good at everything he tries. He is always singing, dancing, beat boxing or telling jokes. He is always the life of the party. ALWAYS!
Despite the challenges he faces daily, he always has a good attitude and never lets CF keep him from reaching for the stars. Although advocating and educating are our main goals here, it definitely doesn’t hurt to try and raise some money for our cause, too. Through money raised, the foundation is able to help support major break throughs for every one with CF. Sam is living proof of how life-changing these medications can be. Sam started Trikafta in July of 2021 and it changed our little world. The dramatic decrease of hospital admissions, the coughing not being 24/7, the weight gain. It’s amazing. It improved his quality of life. Even though this is amazing for Sam and other kids that can be on this medicine, there are still soooo many people with CF that don’t have a drug like this available for them yet.
This is why we advocate. This is why we educate. This is why we raise money. This is why we have awareness walks. This is why we make t-shirts. It’s all for them and it’s all in hopes that one day CF will stand for Cure Found. Thank you so much to everyone who shares these posts and who helps us raise awareness. From the bottom of my heart, I appreciate you so much. To the world, he may just be another kid but to me, he is my world. Together we can!
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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