Liz Scheinost
Whenever you give or fundraise for the Cystic Fibrosis Foundation, they ask, "What is your connection to CF?" And, I always answer, "I have no direct relation to CF."
I have no direct connection to CF. However, in 2016 when the recruiter asked if I would like to work at the CF Foundation I was beyond thrilled. While I didn't really know much about the CF Foundation, I knew that President Obama talked about CF in his state of the union and that the CF Foundation had pioneered venture philanthropy. You see my passion is in supporting nonprofits in achieving their missions - I even got my master's degree in philanthropic studies with an emphasis in non-profit management. So when the Foundation recruited me, I responded with a resounding YES! They were a mission-driven organization, leading by example with the passion and innovation to achieve their mission. But, I had no direct connection to CF.
I have no direct connection to CF. However, over the last nine years, I have grown to admire, respect, and care for the CF community. I have celebrated with the community when medical breakthroughs happened (i.e., Orkambi, Trikafta). I walked with the community through seasons of intense uncertainty (i.e., COVID). I have wept as we lost members of the community. I have been awed at the amazing courage and resilience of the CF community as they have enrolled in clinical trials, advocated for themselves and each other, fundraised with a passion, and never stopped driving towards a Cure.
I have no direct connection to CF - but CF now has a direct connection to me.
I am now and will always be a part of this work. Yes, in my daily job I will work hard to move the mission of the CF Foundation forward. But, it's more than that. I will not stop fighting to find a cure - I will cycle with a team, bake in a bake sale, write letters to advocate, and come to my friends and families with a request to join me in this mission.
CF has a connection to me...and for that reason I will not stop until its done. I will not stop until we achieve the mission, to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
For those of you without a direct connection to CF, here is some high-level information. CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
I have no direct connection to CF. However, in 2016 when the recruiter asked if I would like to work at the CF Foundation I was beyond thrilled. While I didn't really know much about the CF Foundation, I knew that President Obama talked about CF in his state of the union and that the CF Foundation had pioneered venture philanthropy. You see my passion is in supporting nonprofits in achieving their missions - I even got my master's degree in philanthropic studies with an emphasis in non-profit management. So when the Foundation recruited me, I responded with a resounding YES! They were a mission-driven organization, leading by example with the passion and innovation to achieve their mission. But, I had no direct connection to CF.
I have no direct connection to CF. However, over the last nine years, I have grown to admire, respect, and care for the CF community. I have celebrated with the community when medical breakthroughs happened (i.e., Orkambi, Trikafta). I walked with the community through seasons of intense uncertainty (i.e., COVID). I have wept as we lost members of the community. I have been awed at the amazing courage and resilience of the CF community as they have enrolled in clinical trials, advocated for themselves and each other, fundraised with a passion, and never stopped driving towards a Cure.
I have no direct connection to CF - but CF now has a direct connection to me.
I am now and will always be a part of this work. Yes, in my daily job I will work hard to move the mission of the CF Foundation forward. But, it's more than that. I will not stop fighting to find a cure - I will cycle with a team, bake in a bake sale, write letters to advocate, and come to my friends and families with a request to join me in this mission.
CF has a connection to me...and for that reason I will not stop until its done. I will not stop until we achieve the mission, to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
For those of you without a direct connection to CF, here is some high-level information. CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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