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My Great Strides Story

Nicole Edwards

Fundraising for Metro East, IL Great Strides 2026

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Nicole Edwards

There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.

 
How has Cystic Fibrosis changed my family's life?

My cousin, Makenzie, was diagnosed with Cystic
Fibrosis in 2000. At that time, our family faced tremendous uncertainty, limited treatment options, and few resources to guide us. We did not know what milestones she might reach or what her future would hold. Thanks to decades of research, innovation, and advocacy, treatments for Cystic Fibrosis have advanced dramatically. Today, Makenzie is married, a new mom, and an ASL teacher in the Dallas–Fort Worth area. Her story is a testament to the power of continued research and support. While progress has been made, Cystic Fibrosis still impacts too many families. No family should have to face this disease without hope, resources, and the promise of better outcomes.

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.