My Great Strides Story
Pam Gaffney
Fundraising for Middle Tennessee Great Strides
Pam Gaffney
It has been 16 years since Trenton and Marlaina were diagnosed with cystic fibrosis; two phone calls I will never ever forget, as long as I live.
In these 16 years Gaffney Kids for a Cure has raised over $94,000 for research. We have been blessed by witnessing science unfold with the CF population, developing five corrective drugs that are now serving 90% of the CF population…beyond amazing!!!!
So, you might ask, why not be done with fundraising?….
Because there is the other 10% of people living with CF that are still fighting for cure. They do not have a corrective drug, they are not part of the 90%, they are the group of rare mutation, the last 10%.
Unfortunately, Marlaina and Trenton are part of this 10%, making this fight even more personal.
This is why it is not done yet. This is a very personal fight for this mom. They deserve the same hope, the same miracle treatment that the other 90% already have.
We have watched so much evolve and we have watched so many people’s lives change for the better, at the same time, I’ve also watched many lose their battle. I have watched other moms say goodbye to their children, despite their wish for CF to equal, a cure found.
As Trenton and Marlaina‘s mom I must keep fighting. I will never stop fighting for them.
I want to see their longevity change; I want to see longevity change for ALL those who make up this last 10%.
Many of my friends know that my long-term goal has been to raise $100,000. I am very, very close. The fact is, we cannot find a cure without paying for science, it is that simple.
The CF Foundation historically and very relentlessly has made amazing decisions allocating their donation funds. Just look how much they have done so far in just these past 16 years; already serving 90% of those living with this invisible disease.
We would appreciate your donation to the CF foundation, supporting the efforts of The Gaffney Kids For A Cure team. Please consider our very personal cause.
Warmly, and with our deepest appreciation,
Pam, Trenton and Marlaina
For more details on CF, please go to CFF.org
In these 16 years Gaffney Kids for a Cure has raised over $94,000 for research. We have been blessed by witnessing science unfold with the CF population, developing five corrective drugs that are now serving 90% of the CF population…beyond amazing!!!!
So, you might ask, why not be done with fundraising?….
Because there is the other 10% of people living with CF that are still fighting for cure. They do not have a corrective drug, they are not part of the 90%, they are the group of rare mutation, the last 10%.
Unfortunately, Marlaina and Trenton are part of this 10%, making this fight even more personal.
This is why it is not done yet. This is a very personal fight for this mom. They deserve the same hope, the same miracle treatment that the other 90% already have.
We have watched so much evolve and we have watched so many people’s lives change for the better, at the same time, I’ve also watched many lose their battle. I have watched other moms say goodbye to their children, despite their wish for CF to equal, a cure found.
As Trenton and Marlaina‘s mom I must keep fighting. I will never stop fighting for them.
I want to see their longevity change; I want to see longevity change for ALL those who make up this last 10%.
Many of my friends know that my long-term goal has been to raise $100,000. I am very, very close. The fact is, we cannot find a cure without paying for science, it is that simple.
The CF Foundation historically and very relentlessly has made amazing decisions allocating their donation funds. Just look how much they have done so far in just these past 16 years; already serving 90% of those living with this invisible disease.
We would appreciate your donation to the CF foundation, supporting the efforts of The Gaffney Kids For A Cure team. Please consider our very personal cause.
Warmly, and with our deepest appreciation,
Pam, Trenton and Marlaina
For more details on CF, please go to CFF.org
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