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My Great Strides Story

Corey Jenkins

Fundraising for Mobile Great Strides

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Corey Jenkins

Cystic Fibrosis is a genetic disease that affects the lungs, pancreas, and other vital organs. Hard to treat bacterial infections in the lungs lead to irreversible lung damage. Thick mucus in the pancreas leads to digestive issues and difficulty gaining and maintaining one’s weight. There have been many advances in the treatment and management of CF, but a cure has not been found.

The journey towards a cure is why I am walking in the Great Strides Walk on May 3rd. This journey is personal to me as my children, Hayden and Maggie, have CF. Hayden is 24 and currently living in Nashville and attending Vanderbilt University pursuing his doctorate in Mechanical Engineering. Maggie is 21 and currently living in Birmingham. This last year has been difficult for her, and she made the difficult decision this semester to medically withdraw from school allowing her to focus on her health. She is looking forward to returning to school in the fall and attend Culinary School with a focus on pastries.

They both culture a drug-resistant bacteria in their lungs called NTM. Maggie is currently on a rigorous antibiotic regimen to treat the NTM which has been slow to respond to therapy. With the research being done through the Foundation, she is starting a new treatment in the next weeks that has shown promising results in the trials thus far.

Your support in my fundraising effort will continue the vital research that is being done to not only improve the lives of those battling this disease daily but lead to CF standing for CURE FOUND instead of Cystic Fibrosis.

 

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$440
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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.