My Great Strides Story
Jennifer Baron
Fundraising for Mohawk Valley Great Strides
Jennifer Baron
During our first pregnancy, we learned of the possibility that our children could have Cystic Fibrosis, as we are both carriers. Our second child, Brice, was tested and diagnosed with CF at one week old. When we received the news, we were scared for him, afraid for ourselves, and worried about whether he would be okay and what the future would hold for our tiny baby boy. The CF specialist tried various medications to help Brice gain weight. As an infant, we did daily chest physical therapy by hand. At three years old, he continues to have daily therapy to keep his lungs clear. We learned that he must be more cautious, especially during cold and flu season, as it takes him longer to fight viruses.
Since the age of two, he has also been on life-altering gene medication taken daily, alongside other medications at every meal. Despite this, Brice is a regular, energetic boy, though he must adhere to structured mealtimes.
The Cystic Fibrosis Foundation has been instrumental in driving research that has led to significant advancements in treatment and increased life expectancy for those with CF. We have witnessed firsthand the incredible progress made, offering the hope of a more typical life for individuals like Brice.
Please feel free to contact us with any questions you may have. We are always happy to share more information about cystic fibrosis (CF), as we didn't know anything about it ourselves until three years ago.
We are asking you to join us in supporting this important cause. By donating to the Cystic Fibrosis Foundation through our team, you will directly contribute to the ongoing research that is vital to finding a cure for our little man and countless others living with CF. Your generosity means everything to our family. Please consider joining our team for the CF walk and donating today.There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Comments