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Team Eli

Fundraising for Mohawk Valley Great Strides

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Team Eli

Welcome to Team Eli!! 
In 2017, the sweetest little blue eyed boy filled an empty space in our little family and we couldn't have been happier. Life was perfect.  Everything changed just a few days later when we received a call that our baby boy's infant screening test came back positive for Cystic Fibrosis. Our first thoughts were "What's Cystic Fibrosis"?  Immediately, we found Google and were hit with articles and images of respiratory vests, life-long medications, frequent doctor visits, and worst of all a life expectancy of 30.  We were certain this was a mistake but his sweat test confirmed the diagnosis.  
Fast forward to today, almost 8 years later.  The life expectancy of someone with CF is around 60, Eli is at the top percentile for height and weight for children his age, he rarely has issues with his breathing, and he takes his medication like a champ!  What felt like a death sentence 8 years ago has turned into hope, endless possibilities, and a bright future.  I truly believe we would be telling a very different story right now if it wasn't for the donations from people like YOU who have  made the advancements in CF research possible through your giving.  We are so SO grateful for our family, friends, complete strangers who have donated without ever having met Eli, and for Eli's AMAZING medical team who has been there since day 1.  We love you and appreciate every single dollar that has selflessly been given out of the love, care, and compassion of your hearts.    The best part? Your donation isn't just helping Eli, it is helping countless other boys, girls, men and women living with this genetic disease, offering so many families hope for a bright future!  From our family to yours, THANK YOU!  

 

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$2,100
raised of $3,500 goal
 

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2 Participants

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.