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My Great Strides Story

Maranda Beckwith

Fundraising for Mohawk Valley Great Strides 2026

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Maranda Beckwith

My adorable niece Kyrie was born with a genetic condition called Cystic Fibrosis (CF).

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. Some individuals with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. Unfortunately, Kyrie happens to be one of those who has rare mutations. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

If you’re looking to donate to a good cause, please consider donating to the Cystic Fibrosis Foundation! I am participating in The Great Strides Walk on May 16, which just days before her 5th birthday. Your donation of any amount will be considered a valuable gift for Kyrie and our family!

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.