GREAT STRIDES for Cystic Fibrosis is BACK – Sunday, May 3^rd at New Canaan High School!
 
We are back for 2026!  We can’t wait to see everyone – and hope that you can join us!  Can you believe we’re a Sophomore!  That’s due in no small part to this amazing team! 
 
So here are the details for this year’s walk:
 
Date:                   Sunday, May 3, 2026
 
Location:             New Canaan High School
                            11 Farm Road, New Canaan, CT 06840
 
Time:                    Check-in 9:00 am / Walk begins 10:00am
 
Here are your three (3) talking points for CF this year….
 
1)We’re not done, there are still 10% of the CF population that CFTR modulators (Kalydeco and Trikafta) do NOT work for — so we need to keep pushing forward to find this next level…
 
2)We need FEDERAL Funding for a MEDICAL RESEARCH – we’ve been asking for additional funds for a new generation of antibiotics (the PASTEUR Act) – but given what’s happened in DC – we need to explain to Congress (up and down both sides of the aisle) – that Federal funding of the NIH and Research – is critical to our futures – it’s not a luxury item!It’s a necessity!
 
3)TRIKAFTA is AWESOME!  It’s having a dramatic impact throughout the CF population – with FEV scores, weight gain, and overall improvement in endurance for most CF patients.  For Aine – it means consistent FEV’s in the 130 range and improved endurance.  She continues to be incredibly active – playing club ice hockey, running, and spin class at UCONN…
 
We can’t wait to see everyone – so click on the link below to join Aine’s Angels ’26…and put Sunday, May 3rd on your calendars….
 
Aine's Angels 2026
 
See you soon!
 
 Jim, Tricia, Fiona & Aine