Harry's Great Strides Story
Jessica and Matt Haimson
Fundraising for New Canaan Great Strides 2026
Jessica and Matt Haimson
When Harry was just two weeks old, our lives changed in a way we never could have imagined. Our beautiful baby boy was diagnosed with Cystic Fibrosis. Nothing prepares you for hearing that your child has a serious, life-shortening disease. We were scared, heartbroken, and overwhelmed, but from that moment on, we knew our job was simple: love Harry fiercely and do everything we could to give him the best life possible.
Over the past year, we’ve learned what it truly means to live with CF. We’ve become his advocates, caregivers, and medical managers- juggling daily treatments, medications, and constant monitoring - while also trying to make sure Harry’s days are filled with laughter, play, and all the joy a little boy deserves.
Cystic Fibrosis affects the lungs, pancreas, and other vital organs, making breathing harder and everyday illnesses more dangerous. No two CF journeys look the same. While there have been incredible medical advances, many people with CF still don’t have access to treatments that work for them—and a cure remains out of reach.
We are incredibly grateful that Harry will qualify for modulator therapies, which can significantly improve his quality of life. At the same time, we know how many families are still waiting and hoping for options that work for their children. That’s why this fundraiser means so much to us. Supporting CF research helps move science forward for everyone living with this disease.
We also want to express our deepest gratitude from the bottom of our hearts. To everyone who joined our team, donated, shared our story, or supported us last year. Your generosity carried us through one of the hardest seasons of our lives and reminded us that we are not alone. We feel that love every single day.
There is still no cure for Cystic Fibrosis. But we hold onto hope. Hope that during Harry’s lifetime, breakthroughs will continue, and that one day CF will no longer define his future. Our dream is simple: that Harry can grow up healthy, free, and with the same opportunities as any other child.
Thank you for being here, for caring, and for standing with our family. Together, we can make a difference - for Harry, and for everyone living with Cystic Fibrosis.
Over the past year, we’ve learned what it truly means to live with CF. We’ve become his advocates, caregivers, and medical managers- juggling daily treatments, medications, and constant monitoring - while also trying to make sure Harry’s days are filled with laughter, play, and all the joy a little boy deserves.
Cystic Fibrosis affects the lungs, pancreas, and other vital organs, making breathing harder and everyday illnesses more dangerous. No two CF journeys look the same. While there have been incredible medical advances, many people with CF still don’t have access to treatments that work for them—and a cure remains out of reach.
We are incredibly grateful that Harry will qualify for modulator therapies, which can significantly improve his quality of life. At the same time, we know how many families are still waiting and hoping for options that work for their children. That’s why this fundraiser means so much to us. Supporting CF research helps move science forward for everyone living with this disease.
We also want to express our deepest gratitude from the bottom of our hearts. To everyone who joined our team, donated, shared our story, or supported us last year. Your generosity carried us through one of the hardest seasons of our lives and reminded us that we are not alone. We feel that love every single day.
There is still no cure for Cystic Fibrosis. But we hold onto hope. Hope that during Harry’s lifetime, breakthroughs will continue, and that one day CF will no longer define his future. Our dream is simple: that Harry can grow up healthy, free, and with the same opportunities as any other child.
Thank you for being here, for caring, and for standing with our family. Together, we can make a difference - for Harry, and for everyone living with Cystic Fibrosis.
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