AVERY'S ARMY
Avery's Army
Avery's Army
Avery, age 6, is your typical independent, enthusiastic, caring, yet sassy girl. She has a love for her best friend and sister, Brinley, dancing, crafting and playing with her friends. Although she appears to be like any other, she has an internal fight with her body daily.
Avery was diagnosed with cystic fibrosis when she was only 9 days new. Although she has had an (rather) uncomplicated course thus far, it is because of the many preventative measures that she does to ensure that she stays healthy.
Her regimen includes:
- clinic visits every 3 months (consisting of seeing a respiratory therapist, pulmonologist, nutritionist, social worker and psychologist in addition to doing pulmonary function testing)
- taking 1-3 pills with each snack and meal. This accounts to about 350 pills a month
- taking a medication to stimulate her appetite
- taking 2 different multi vitamins
- taking a CFTR modulator drug twice daily to help at the molecular level (this helps to decrease the sticky mucus causing complications with people who have CF such as GI issues and pulmonary infections)
- percussion vest therapy as needed to aid with airway clearance of her thick and sticky mucus.
When Avery was born 6 years ago, the life expectancy for someone with CF was 35 years, but with advancements in research and the development of improved medications, the life expectancy has grown to 50+ in such a short period of time. We are only hoping that one day soon, when a cure is found, the life expectancy won't be any different than the average person!
We will not stop fighting and raising money to further fund research until CF=CURE FOUND!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Avery was diagnosed with cystic fibrosis when she was only 9 days new. Although she has had an (rather) uncomplicated course thus far, it is because of the many preventative measures that she does to ensure that she stays healthy.
Her regimen includes:
- clinic visits every 3 months (consisting of seeing a respiratory therapist, pulmonologist, nutritionist, social worker and psychologist in addition to doing pulmonary function testing)
- taking 1-3 pills with each snack and meal. This accounts to about 350 pills a month
- taking a medication to stimulate her appetite
- taking 2 different multi vitamins
- taking a CFTR modulator drug twice daily to help at the molecular level (this helps to decrease the sticky mucus causing complications with people who have CF such as GI issues and pulmonary infections)
- percussion vest therapy as needed to aid with airway clearance of her thick and sticky mucus.
When Avery was born 6 years ago, the life expectancy for someone with CF was 35 years, but with advancements in research and the development of improved medications, the life expectancy has grown to 50+ in such a short period of time. We are only hoping that one day soon, when a cure is found, the life expectancy won't be any different than the average person!
We will not stop fighting and raising money to further fund research until CF=CURE FOUND!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Comments