Edwin was diagnosed with cystic fibrosis through his newborn screening. By two weeks old, he was on medication and seeing his care team weekly. At three months, his liver began to fail due to CF complications. With much prayer—and the care of his wonderful doctors—his liver recovered by six months, and his growth journey began.

Edwin is now 3½ years old and kicking CF’s butt. His daily routine includes a fistful of medications, breathing treatments, and CPT therapy. He embraces the challenges CF throws at him and is living well—full of joy—and he’s my everyday hero.