Hi everybody! 

Our son Tucker has cystic fibrosis, we have known this since in early in pregnancy and we have been lucky enough to have so many resources within our community as well as traveling. There is such a community with CF and we are so grateful for everyone we have met and learned from.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

When Tuck was born, he had meconium ileus which is a complication related to CF for newborns, basically he had an intestinal blockage that he required some help removing. After 8 days in the NICU, we finally made it home and he’s been a champ since! 

Although cystic fibrosis is scary, it has come so far in the past few years. Medications now make cystic fibrosis more manageable and many of those affected are able to live long and fulfilling lives. We are so grateful to have the medical advancements we do.

Even though life is more manageable , we are one day hoping for a cure like everyone else who is affected by CF. 

Although difficult, we are proud to be apart of a community who has already provided so much support for us and we are excited to start giving back.