Walk with our team to Cure Cystic Fibrosis
Go For Joe And Jen
Fundraising for North Suburban Great Strides
Go for Joe and Jen
Greetings and thank you for your continued support to the Cystic Fibrosis Foundation! This year marks our 20th year of fundraising for the foundation (with a gap year in 2020). We've been blessed by your participation in so many ways, it's difficult to put into words exactly how much your steadfast kindness has meant to our family, and the entire Cystic Fibrosis community, throughout the years.
In 2019 a CFTR modulator became available to 90% of the CF population that corrected the genetic defect in people with Cystic Fibrosis! For those that do not know, Joe was one of the fortunate, historic, trial participants that helped this drug come to fruition.
You might be wondering: why are we continuing to fundraise if Joe is taking a pill that corrects Cystic Fibrosis? The answer is, 10% of the people with CF do NOT have a CFTR modulator that works for them; that equates to about 7,000 people that still need our help.
Not only that, but we have found that the annual CF GREAT STRIDES walk is something friends and family put on their calendars and look forward to each year. It is a chance to see each other, share a lunch and get some exercise.
On May 31st we will be at a new location - Deer Grove East in Palatine Grove 1. The entrance is off Dundee Road near Hicks road. I'm sure there will be balloons and signs to guide you. It will be an adventure! We plan get there to set up at 9:00 a.m. Registration and t-shirt pick up is at 9:30 a.m. and the walk steps off 10:00. The walk is typically the distance of a 5k. If you are limited in time or ability, you can shorten the walk or sit at our tent with the team's belongings. Whatever your capability we have a place for you!
Thank you for making this your charity! We know there are many to choose from so please know we value your partnership in this.
With much love and gratitude,
Stacy, Mike, Joe and Josh
In 2019 a CFTR modulator became available to 90% of the CF population that corrected the genetic defect in people with Cystic Fibrosis! For those that do not know, Joe was one of the fortunate, historic, trial participants that helped this drug come to fruition.
You might be wondering: why are we continuing to fundraise if Joe is taking a pill that corrects Cystic Fibrosis? The answer is, 10% of the people with CF do NOT have a CFTR modulator that works for them; that equates to about 7,000 people that still need our help.
Not only that, but we have found that the annual CF GREAT STRIDES walk is something friends and family put on their calendars and look forward to each year. It is a chance to see each other, share a lunch and get some exercise.
On May 31st we will be at a new location - Deer Grove East in Palatine Grove 1. The entrance is off Dundee Road near Hicks road. I'm sure there will be balloons and signs to guide you. It will be an adventure! We plan get there to set up at 9:00 a.m. Registration and t-shirt pick up is at 9:30 a.m. and the walk steps off 10:00. The walk is typically the distance of a 5k. If you are limited in time or ability, you can shorten the walk or sit at our tent with the team's belongings. Whatever your capability we have a place for you!
Thank you for making this your charity! We know there are many to choose from so please know we value your partnership in this.
With much love and gratitude,
Stacy, Mike, Joe and Josh
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