Walk with our team to Cure Cystic Fibrosis

Move For Macy

Move for Macy

We are the team Move for Macy.

Macy Leigh was born in May of 2018. Two days after she was born, she was airlifted to a hospital in Chicago because of an abnormal X-ray of her intestines. She stayed there in the NICU where they ran a series of tests on her due to what was called Meconium Ileus, and after four nights was released. We found ourselves back in the ER two days after she was released and with multiple tests done, at nine days old she was diagnosed with Cystic Fibrosis.

Cystic Fibrosis, or CF for short, is a genetic life-threatening disorder that causes severe damage to the lungs, digestive system and other organs in the body. It affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. But in people with CF, a defective gene causes the secretions to become thick and sticky. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the lungs and pancreas.

But even CF won't define our girl. Macy is every bit of sassy as she is sweet, incredibly strong, and very determined. She is a champ when it comes to doing her Airway Clearance(vest time), Albuterol, Pulmozyme, Sodium Chloride, taking her vitamins, enzymes and any other medication that is necessary. This strong-willed girl does all she has to with ease and we couldn't be more proud.

So please, we ask you to join our team or consider donating to help add tomorrows to not only our Macy, but everyone living with Cystic Fibrosis. By joining our team or making a donation, you are joining a growing group of people committed to finding a cure. We will not rest until all those with CF have a cure. The time is now. Together, we can conquer this disease.

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

We walk for Macy, our beautiful daughter. Someone's sister, grand daughter, niece, cousin and friend.

We stride so she may one day be able to call herself these things and much more.
WE MOVE UNTIL CF
STANDS FOR CURE FOUND.