My Great Strides Story
Meghan Noonan
Fundraising for Northwest Indiana Great Strides 2026
Meghan Noonan
As most of you know, my beautiful cousin Alexandra has fought her entire life with Cystic Fibrosis. Her two babies, Landon and Estelle were also diagnosed with CF. Every year I raise money to help them find a cure. Alexandra was sadly taken from us in a car accident this past November leaving behind her two beautiful CF babies and a loving husband Taylor doing everything he can to give them a healthy life. I’ll post his story below so you can have insight as to what it’s like to live with CF. In a few weeks we are doing the CF walk here in Crown Point while my family in Florida does the CF walk down there, in the hopes to one day find a cure. There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
My Journey with Cystic Fibrosis has been the beginning of a lifelong testimony and the responsibility to raise awareness and continue a loving legacy.
Here’s Taylor’s story:
I am the spouse and father of 3 Cystic Fibrosis warriors:
I was introduced to my loving wife, Alexandra Ashby, in 2015, and we quickly developed a friendship that turned into an unbelievable and unrelenting love story. Through her hospitalizations and daily battle, I feel for her tenacity and spark for life. We were married in 2019, and soon welcomed our Son, Landon, in November of that year. We found out about his CF diagnosis right before Christmas that year.
Their journey led to battles with pharmacies, wellness grants, and the eventual clinical trials that allowed them both to be given Tricafta, which has changed our lives and outlook on CF for the better. Our daughter Estelle was born in October of 2024 and was diagnosed that Spring. Juggling a home with 3 CCFerswas exhausting, but we strived to not to make this disease our identity. We continued to grow through what we went through."
On November 14th, 2025, our world was flipped upside down when Alex tragically died in a single-car accident early that morning. I now face life with my children as a widowed father of two CFers. But this tragedy will not slow our resolve to raise awareness, continue to advocate for research, and fight until the day CF stands for Cure Found.
I hope you join us in May, or donate to this cause, as we continue to "Grow Through what you go Through".
- The Ashby's
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
My Journey with Cystic Fibrosis has been the beginning of a lifelong testimony and the responsibility to raise awareness and continue a loving legacy.
Here’s Taylor’s story:
I am the spouse and father of 3 Cystic Fibrosis warriors:
I was introduced to my loving wife, Alexandra Ashby, in 2015, and we quickly developed a friendship that turned into an unbelievable and unrelenting love story. Through her hospitalizations and daily battle, I feel for her tenacity and spark for life. We were married in 2019, and soon welcomed our Son, Landon, in November of that year. We found out about his CF diagnosis right before Christmas that year.
Their journey led to battles with pharmacies, wellness grants, and the eventual clinical trials that allowed them both to be given Tricafta, which has changed our lives and outlook on CF for the better. Our daughter Estelle was born in October of 2024 and was diagnosed that Spring. Juggling a home with 3 CCFerswas exhausting, but we strived to not to make this disease our identity. We continued to grow through what we went through."
On November 14th, 2025, our world was flipped upside down when Alex tragically died in a single-car accident early that morning. I now face life with my children as a widowed father of two CFers. But this tragedy will not slow our resolve to raise awareness, continue to advocate for research, and fight until the day CF stands for Cure Found.
I hope you join us in May, or donate to this cause, as we continue to "Grow Through what you go Through".
- The Ashby's
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