Why I Walk for Cystic Fibrosis Growing up, I watched my sister, Jennifer Gavilanes, spend countless days in the hospital battling a disease I didn’t fully understand. As a teenager, I often stayed overnight as a visitor—sitting beside her during rounds of nebulizer treatments, chest physiotherapy, and long conversations with specialists. Those early experiences shaped who I am. They’re the reason I pursued a career in healthcare and became a nurse. Jennifer is a two-time double lung transplant recipient. Both times, she was placed on ECMO, and our family lived in fear of losing her. By what can only be described as a miracle, she received the gift of lungs—twice. Her resilience is something I carry with me every day, but so is the reality of this disease and what it has taken from her and so many others. After having children, I underwent genetic testing and learned that I am a carrier of cystic fibrosis. This means my grandchildren could one day be at risk if my children have children with someone who is also a carrier. Knowing this drives my passion to raise awareness and advocate for a cure. Cystic fibrosis is a devastating illness. It shortens lives, disrupts futures, and takes an enormous toll on families. Too many lives have been lost far too soon. I walk not only for my sister, but for every person fighting this disease—and for those who will be diagnosed tomorrow. Please help me fight for a cure. With your support, we can create a future where cystic fibrosis is no longer a life-threatening condition.


My Great Strides Story
Emely Shoenfelt
Fundraising for Orange County Great Strides
Emely Shoenfelt
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
APR
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