Walk with our team to Cure Cystic Fibrosis
Team Ethan Jelderda
Fundraising for Orange County Great Strides
Team Ethan Jelderda
Hello Family and Friends,
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
We are raising money again this year in the fight against Cystic Fibrosis in the hope that a cure will eventually be found to help our 15-year-old son, Ethan, and the thousands of others inflicted with this devastating disease. Your donation, however small, is very much appreciated. If you are unable to donate, I want to thank you again if you donated in the past. I would also like to ask for your prayers that Ethan can one day lead a life free of the concerns that basic illnesses will cause serious lung damage.
There has been tremendous progress in the last few years, and new medications are now available that have helped improve lung function and slow the disease progression in many cases. In 2022, Ethan completed a clinical trial for one of these new medications, Trikafta, which has helped him clear mucus easier and recover from viruses quicker. The drug has now been approved by the FDA and has continued to help Ethan stay healthy. It’s thanks to donations like yours that these advances have been made, and we are so grateful.
Ethan is currently 18 months into a 2-year antibiotic plan fighting Pseudomonas, an aggressive bacteria that can cause serious lung damage. He is also fighting a fungus called Aspergillus Fumigatus in which he has received six, 3 1/2-hour infusions of (pulse), high dose steroids to help rid his body of the allergic reaction he is currently experiencing to the aspergillus fungus within his lungs. He also takes anti-fungal medications twice daily, which has caused him to have to significantly reduce his dosage of Trikafta, one of the life-changing modulator medications, so that his liver is not overloaded.
Back in December, he suffered a lung collapse of the left lung during a routine bronchoscopy and spent 5 days in the hospital. The fight isn't over. We still need a cure. We need CF to stand for Cure Found. We are virtual walkers this year for our annual fundraising walk coming up soon, but donations can be collected well afterward and are tax deductible. It's not too late! He turns 16 on the 11th of May!
Please click the link below to take you to our fundraising page if you are able to make a donation. If your employer matches donations, please check the “Would you like your employer to match?” check box and pick your employer from the dropdown list. You will also need to submit for the match directly with your employer. You will need to upload a copy of your receipt, so save and print the donation confirmation email, or print the donation confirmation page using a “Save as PDF” option. Thank you for taking extra time to do this to maximize your donation!
Thank you so much,
Mike and Shelley
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
We are raising money again this year in the fight against Cystic Fibrosis in the hope that a cure will eventually be found to help our 15-year-old son, Ethan, and the thousands of others inflicted with this devastating disease. Your donation, however small, is very much appreciated. If you are unable to donate, I want to thank you again if you donated in the past. I would also like to ask for your prayers that Ethan can one day lead a life free of the concerns that basic illnesses will cause serious lung damage.
There has been tremendous progress in the last few years, and new medications are now available that have helped improve lung function and slow the disease progression in many cases. In 2022, Ethan completed a clinical trial for one of these new medications, Trikafta, which has helped him clear mucus easier and recover from viruses quicker. The drug has now been approved by the FDA and has continued to help Ethan stay healthy. It’s thanks to donations like yours that these advances have been made, and we are so grateful.
Ethan is currently 18 months into a 2-year antibiotic plan fighting Pseudomonas, an aggressive bacteria that can cause serious lung damage. He is also fighting a fungus called Aspergillus Fumigatus in which he has received six, 3 1/2-hour infusions of (pulse), high dose steroids to help rid his body of the allergic reaction he is currently experiencing to the aspergillus fungus within his lungs. He also takes anti-fungal medications twice daily, which has caused him to have to significantly reduce his dosage of Trikafta, one of the life-changing modulator medications, so that his liver is not overloaded.
Back in December, he suffered a lung collapse of the left lung during a routine bronchoscopy and spent 5 days in the hospital. The fight isn't over. We still need a cure. We need CF to stand for Cure Found. We are virtual walkers this year for our annual fundraising walk coming up soon, but donations can be collected well afterward and are tax deductible. It's not too late! He turns 16 on the 11th of May!
Please click the link below to take you to our fundraising page if you are able to make a donation. If your employer matches donations, please check the “Would you like your employer to match?” check box and pick your employer from the dropdown list. You will also need to submit for the match directly with your employer. You will need to upload a copy of your receipt, so save and print the donation confirmation email, or print the donation confirmation page using a “Save as PDF” option. Thank you for taking extra time to do this to maximize your donation!
Thank you so much,
Mike and Shelley
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