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Devoney's CF journey!

Jane DeFaria

Fundraising for Pawtucket Great Strides 2026

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Jane DeFaria

Our daughter-in-law, Devoney, was born with Cystic Fibrosis 35 years ago. She has been through a lot in those years. In November 2018 she had a double lung transplant, in January 2019 she was diagnosed with a bacterial infection, then at the end of that hospital stay they found out she had PTLD. A rare cancer associated from complications from her transplant! 
She has since had treatments and has been thriving since! We walk in honor of her and the many Cystic Fibrosis community who live through this struggle every day!

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality. 

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
MAR
22

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$100
raised of $350 goal
 

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.

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