Meet the 2025 NorCal Great Strides Ambassador
Robyn Primack
Robyn Primack
Welcome to my fundraising page, my name is Robyn and I’m the 2025 Great Strides Ambassador. Thank you for taking time to read about my story.
I was diagnosed with CF at birth and my family started participating in Great Strides when I was a toddler. In high school, my sister organized a team in my honor and I walked in San Diego on Team Robyn. As an adult, I continued to organize Team Robyn annually, walking in San Francisco, Sacramento, and even in Washington, DC!
In 2020, I was eligible to start a new CF modulator called Trikafta, a newly developed medication due to the advancements of CF research. Trikafta has drastically improved my symptoms and quality of life.
During the pandemic and my first few years on Trikafta, I found support online from other members of the CF community and was able to make virtual friends with CF. I was able to hear first-hand about the experience of others with CF who are a part of the 10% who do not qualify for modulator therapies like Trikafta. Hearing these stories has helped motivate me to continue to advocate, fundraise, and raise awareness for the entire CF community.
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.I was diagnosed with CF at birth and my family started participating in Great Strides when I was a toddler. In high school, my sister organized a team in my honor and I walked in San Diego on Team Robyn. As an adult, I continued to organize Team Robyn annually, walking in San Francisco, Sacramento, and even in Washington, DC!
In 2020, I was eligible to start a new CF modulator called Trikafta, a newly developed medication due to the advancements of CF research. Trikafta has drastically improved my symptoms and quality of life.
During the pandemic and my first few years on Trikafta, I found support online from other members of the CF community and was able to make virtual friends with CF. I was able to hear first-hand about the experience of others with CF who are a part of the 10% who do not qualify for modulator therapies like Trikafta. Hearing these stories has helped motivate me to continue to advocate, fundraise, and raise awareness for the entire CF community.
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