My Great Strides Story
Aly Crawford
Fundraising for San Antonio Great Strides
Aly Crawford
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Cystic Fibrosis has been hard on our family. It can be hard to talk about with friends and family, and sometimes it feels weird to fundraise. On the outside Travis is a growing, happy, and strong boy. He's nearly 4 and spends about an hour of his day, everyday doings treatments and taking medicines. Everyday, even on birthdays, and Christmas, and the hard days and the busy days; on the sick days he does even more treatments. He takes multiple medicines everyday - with every meal and like clockwork every morning and evening. For him, and us, it's normal. This is just part of his life. He's also going to school, playing, and building trains and zoos for his dinosaurs. He loves to swing and go to the park. He never seems to run out of energy. Right now, he is healthy and we fight like hell to keep it that way. But we also know this disease will keep fighting his body too. Until there's a cure.
The Cystic Fibrosis Foundation is committed to making that dream a reality. The amazing work and fundraising of the CFF is the reason we have had such a wonderful support from our CF clinic and access to resources through the foundation, as well as the many wonderful people we've met along the way. Each year we have decided to walk in the Great Strides event as Travis' team. This year Travis and the Goo Fighters will be fundraising and walking in the San Antonio Great Strides on September 6th. Please come out and walk, or if you're up for it, this year we also have a 5k!
Donations mean a lot to us. Without them we wouldn't have the advanced medicines we have now, like Trikafta. Before medicines like this one, only the symptoms of CF could be treated. This new type of medicine, made possible only by the funding from the Cystic Fibrosis Foundation, is working at a cellular level. This is a wonderful step forward, especially when you look back to the not so distant history of this disease when life expectancies were less than 10 years old. But this medicine doesn't work for all CFers, and as wonderful as the medicine is, it doesn't take away the need for our daily and preventative fights against the disease. If Travis got sick right now, things could change very quickly. It's not a cure. Yet.
Thank you so much for taking the time to read this and being a part of the wonderful community that supports our little warrior, Travis. We do it all for him, and we could not do it without you. If you have any questions about the event, fundraising, or getting involved please reach out.
With Love,
Aly and Trevor Crawford
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Cystic Fibrosis has been hard on our family. It can be hard to talk about with friends and family, and sometimes it feels weird to fundraise. On the outside Travis is a growing, happy, and strong boy. He's nearly 4 and spends about an hour of his day, everyday doings treatments and taking medicines. Everyday, even on birthdays, and Christmas, and the hard days and the busy days; on the sick days he does even more treatments. He takes multiple medicines everyday - with every meal and like clockwork every morning and evening. For him, and us, it's normal. This is just part of his life. He's also going to school, playing, and building trains and zoos for his dinosaurs. He loves to swing and go to the park. He never seems to run out of energy. Right now, he is healthy and we fight like hell to keep it that way. But we also know this disease will keep fighting his body too. Until there's a cure.
The Cystic Fibrosis Foundation is committed to making that dream a reality. The amazing work and fundraising of the CFF is the reason we have had such a wonderful support from our CF clinic and access to resources through the foundation, as well as the many wonderful people we've met along the way. Each year we have decided to walk in the Great Strides event as Travis' team. This year Travis and the Goo Fighters will be fundraising and walking in the San Antonio Great Strides on September 6th. Please come out and walk, or if you're up for it, this year we also have a 5k!
Donations mean a lot to us. Without them we wouldn't have the advanced medicines we have now, like Trikafta. Before medicines like this one, only the symptoms of CF could be treated. This new type of medicine, made possible only by the funding from the Cystic Fibrosis Foundation, is working at a cellular level. This is a wonderful step forward, especially when you look back to the not so distant history of this disease when life expectancies were less than 10 years old. But this medicine doesn't work for all CFers, and as wonderful as the medicine is, it doesn't take away the need for our daily and preventative fights against the disease. If Travis got sick right now, things could change very quickly. It's not a cure. Yet.
Thank you so much for taking the time to read this and being a part of the wonderful community that supports our little warrior, Travis. We do it all for him, and we could not do it without you. If you have any questions about the event, fundraising, or getting involved please reach out.
With Love,
Aly and Trevor Crawford
AUG
21
21
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