Walk (or Run!) with Rory to cure Cystic Fibrosis
Roarin' For Rory
Fundraising for San Antonio Great Strides
Roarin' for Rory
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure. There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
Our story began in May 2023, when Mackenzie (then still pregnant with Rory) and I found out that our little guy had CF. It was news that left our families and us with both uncertainty and fear. After Rory was born, we were introduced to a lifestyle of balancing medications, treatments, and doctors appointments with simply living life as a new young family. However, our uncertainty shifted to hope and a fighting spirit when we became involved in our local chapter of CFF. We found a community that understands our daily lives, and shares the same vision of making CF stand for "Cure Found" within Rory's life. We decided to start using the lion as our team mascot not only because it's Rory's favorite stuffed animal but because of its representation of strength and courage.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Our story began in May 2023, when Mackenzie (then still pregnant with Rory) and I found out that our little guy had CF. It was news that left our families and us with both uncertainty and fear. After Rory was born, we were introduced to a lifestyle of balancing medications, treatments, and doctors appointments with simply living life as a new young family. However, our uncertainty shifted to hope and a fighting spirit when we became involved in our local chapter of CFF. We found a community that understands our daily lives, and shares the same vision of making CF stand for "Cure Found" within Rory's life. We decided to start using the lion as our team mascot not only because it's Rory's favorite stuffed animal but because of its representation of strength and courage.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
JUL
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