The Reality of Being a CF Family
Tiffany Martindale
Tiffany Martindale
Imagine having a child and 2 weeks later being given their life expectancy age. That was our reality when Luke was born. Before he could even hold his head up, he was taking medicine (enzymes) through his baby bottle because he had a pancreatic insufficiency. Several months later, he endured his first hospitalization because he was having difficulty breathing. Hospitalizations unfortunately became the norm over the course of the next several years. Luke currently takes 12 medications daily and that doesn't include the medication needed when he gets sick. His days are spent doing hours of breathing treatments and chest CPT with an oscillating vest so the thick sticky mucous doesn't get stuck down in his lungs and cause more damage. He developed CF Related Diabetes otherwise known as CFRD while in elementary school. Three years ago a CFTR modulator known as Trikafta was approved for Luke's age group and we have been blessed with Luke being able to take the medication. Luke continues battling his CFRD on a daily basis and I am truly in awe of his strength and perseverance. I walk in support of Luke and the others like him that have CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality and make CF stand for CURE FOUND.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality and make CF stand for CURE FOUND.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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