Walk with Jacob’s Heroes to Cure cystic fibrosis

Jacob’s Heroes
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Jacob’s Heroes

 Jacob, was born with cystic fibrosis. Diagnosed at 1 month old he has endured numerous pokes, hospital stays, missed special events, and everyday things. That all changed when he started Trikafta in 2019. He now lives a pretty much normal life for a 23 year old boy. But that’s not the case for everyone. There is still 10% of the CF population that do not qualify for a miracle drug. 

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
$147.00
$25.00

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$172
raised of $8,023 goal
 

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.