Edit in profile section

My CF Cycle for Life Story

Jodie Tsekrekas

Fundraising for Seacoast Safari CF Cycle for Life

Donate

Jodie Tsekrekas

I started with the foundation 7 years ago, not knowing how this amazing community would become some of the most important humans in my life, and that I will commit to  advocate for daily.

In 2019 a modulator became available that has changed the face of CF for SOME of our friends but not ALL.   This is not a cure..... far from it.  We need to keep our mission moving forward. THERE IS NO CURE FOR CF. 

Please join me or support my mission to continue raising very important funds to keep the research going.
Until CF stands for Cured Forever!  


There is currently no cure for cystic fibrosis and too many people with CF die young. I’m cycling to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Thank you from the top to the top of my heart and for Annie, Chris and all of my amazing friends still fighting the courageous fight every day.
Stay well and be kind!!
~Jodie (Jodhi) 

Comments

$320
raised of $3,000 goal
 

Achievements

Leader

Team Mission Possible

$320
$3,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.