Our sweet Aiden was diagnosed with cystic fibrosis shortly after birth, and the past six months have been a journey filled with emotions, learning, challenges, and incredible strength. When we first heard the diagnosis, our world changed instantly. We were overwhelmed with fear and uncertainty, trying to understand what cystic fibrosis would mean for Aiden’s future. Since then, we’ve learned more medical terms, treatments, and routines than we ever imagined possible. Daily life now includes medications, breathing treatments, enzymes with every feed, several doctor and lab work appointments, and constant attention to nutrition and overall health. What once felt intimidating has slowly become part of our normal routine. Even on the hard days, our baby continues to show us resilience, joy, and determination. There have been moments of worry — waiting on test results, monitoring weight gain, learning about mutations and treatments — but also moments of hope. We are incredibly grateful for the doctors, nurses, therapists, researchers, family, and friends who have supported us along the way. We are also incredibly grateful for the life changing treatments and medications that have become available to him in order to help give him the chance of growing up and living a relatively “normal” life. Despite the challenges, Aiden has always been a happy, loved, beautiful little baby who smiles, grows, cuddles, laughs, and reminds us every day how strong he is. Cystic fibrosis is part of our journey, but it does not define who he is. These first six months have taught us to celebrate every milestone, cherish every healthy day, and appreciate the strength that can grow from difficult circumstances. We know the road ahead may not always be easy, but we also know we are not walking it alone. 💜


My Great Strides Story
Rebecca Marquez
Fundraising for San Luis Obispo Great Strides 2026
Rebecca Marquez
Our sweet Aiden was diagnosed with cystic fibrosis shortly after birth, and the past six months have been a journey filled with emotions, learning, challenges, and incredible strength.
When we first heard the diagnosis, our world changed instantly. We were overwhelmed with fear and uncertainty, trying to understand what cystic fibrosis would mean for Aiden's future. Since then, we've learned more medical terms, treatments, and routines than we ever imagined possible.
Daily life now includes medications, breathing treatments, enzymes with every feed, several doctor and lab work appointments, and constant attention to nutrition and overall health. What once felt intimidating has slowly become part of our normal routine. Even on the hard days, our baby continues to show us resilience, joy, and determination.
There have been moments of worry - waiting on test results, monitoring weight gain, learning about mutations and treatments - but also moments of hope. We are incredibly grateful for the doctors, nurses, therapists, researchers, family, and friends who have supported us along the way.
We are also incredibly grateful for the life changing treatments and medications that have become available to him in order to help give him the chance of growing up and living a relatively "normal" life. Despite the challenges, Aiden has always been a happy, loved, beautiful little baby who smiles, grows, cuddles, laughs, and reminds us every day how strong he is. Cystic fibrosis is part of our journey, but it does not define who he is.
These first six months have taught us to celebrate every milestone, cherish every healthy day, and appreciate the strength that can grow from difficult circumstances. We know the road ahead may not always be easy, but we also know we are not walking it alone!
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
MAY
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