

My Great Strides Story
Abbie Snider
Fundraising for Southeast Tennessee Great Strides 2026
Abbie Snider
Hallie’s story
Hallie was diagnosed with cystic fibrosis at only 6 days old. From that point on her life has changed forever. She is on multiple medications, 40+ pills a day, acid reflux medication, and multiple breathing treatments. She will likely be on these medications and treatments and more until a cure is found. This is not the life we imagined, but we are so blessed to have such an amazing team and foundation to look after our sweet baby.
Commonly asked questions
How did she get CF?
Like many parents of cf kids we were unaware that we were carriers of the cystic fibrosis gene. Two carrier genes, one from each parent, must be present for cystic fibrosis to occur. Making the odds every pregnancy 1/4 chance for the child to have cf, 2/4 chance for the child to also be a carrier, 1/4 chance the child is neither a non cf’er or carrier.
But she doesn’t look sick
Hallie is doing very well so far. With modern day medication we expect her to stay quite healthy for the time being. CF is an internal disease. Major organs are commonly affected. With Hallie’s mutation, double del508, pancreas and lungs are affected the most.
FROM THE CFF
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Hallie was diagnosed with cystic fibrosis at only 6 days old. From that point on her life has changed forever. She is on multiple medications, 40+ pills a day, acid reflux medication, and multiple breathing treatments. She will likely be on these medications and treatments and more until a cure is found. This is not the life we imagined, but we are so blessed to have such an amazing team and foundation to look after our sweet baby.
Commonly asked questions
How did she get CF?
Like many parents of cf kids we were unaware that we were carriers of the cystic fibrosis gene. Two carrier genes, one from each parent, must be present for cystic fibrosis to occur. Making the odds every pregnancy 1/4 chance for the child to have cf, 2/4 chance for the child to also be a carrier, 1/4 chance the child is neither a non cf’er or carrier.
But she doesn’t look sick
Hallie is doing very well so far. With modern day medication we expect her to stay quite healthy for the time being. CF is an internal disease. Major organs are commonly affected. With Hallie’s mutation, double del508, pancreas and lungs are affected the most.
FROM THE CFF
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.







Comments