Our precious granddaughter, Lydia arrived on January 27, 2026. We were thrilled to welcome this little bundle of joy into our family. By the second week of her birth, we were saddened to learn that she had been diagnosed with a rare disease called cystic fibrosis.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
 

I am sharing my daughter’s story in her own words in the hopes that you will take a minute to learn more about cystic fibrosis and make a donation to help find a cure for this disease…

“Lydia's first visit at the CF clinic at Atrium was simultaneously overwhelming and clarifying. We met with several members of the team who each offered us greater understanding of the potential impact of this disease and the necessary intervention. We were struck by our team's encouragement that treatment for CF has drastically improved in the past decade and is continuing to evolve. We left feeling equipped with knowledge and actionable steps for Lydia's treatment. Most salient of all, we left feeling hopeful. It was clear to us that our daughter's health is in good hands and we have every reason to hope that the treatment will benefit her. This was the greatest gift to us, to know that there is intervention that can help our precious daughter now and throughout her life.

“Having immersed ourselves a little more into the CF community since Lydia's diagnosis, it is clear to us that the strides made in treatment and health outcomes for individuals with CF is due to the commitment to funding the science and research enabling the development of new treatments.

“We hope for a world without cystic fibrosis. We hope that our daughter will one day not need intervention to treat her symptoms. We hope that she and many others would not struggle with symptoms of this disease. Team Mighty Miss Lydia is walking to honor our daughter Lydia, and the strength and resilience that she doesn't yet know she possesses. We are walking to commit ourselves to not just imagining, but making possible, a cure for cystic fibrosis.”

There is currently no cure for cystic fibrosis and too many people with CF die young. I am walking to support not only my granddaughter but also support all others who have been diagnosed with this disease.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Team Mighty Miss Lydia appreciates your support!

Pam Blizard