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My Great Strides Story

Winnie Link

Fundraising for Tyler Great Strides 2026

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Winnie Link

Our sweet Winnie Mae is just 1 year old and already one of the strongest little fighters we know💜  She was diagnosed with Cystic Fibrosis, a life-changing genetic disease that affects the lungs, digestion, and so much more. Even though she is currently healthy and happy, CF is something she will battle every single day.

What makes Winnie’s journey even more rare is that there are only about 1,700 people who share her exact gene mutations. That means fewer targeted treatments and more uncertainty about what the future holds — which is why raising awareness and funding research is so important.

Cystic fibrosis doesn’t just affect breathing. It can impact nearly every part of the body:
• It often causes 
pancreatic insufficiency, making it hard for Winnie to absorb nutrients and grow properly without daily enzymes
• It can lead to 
liver disease, creating additional health complications over time
• It increases the risk of 
CF-related diabetes, adding another layer of challenges to manage

Behind her smiles are daily treatments, medications, and a lifetime of care. But Winnie is full of joy, light, and strength — and she deserves a future filled with possibilities.

We are raising money to help fund research, improve treatments, and ultimately find a cure — not just for Winnie, but for every person fighting CF.

Every donation, share, and prayer brings us one step closer to a cure. 💜

Thank you for loving and supporting Winnie Mae.
#WinniesTeam #CysticFibrosisAwareness #FightForACure #CFWarrior

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.