Dan Kominsky
Why do I fundraise for the Cystic Fibrosis Foundation? Because my wife, Sara, is the light of my life. She has CF, and:
It has not been an easy journey. There have been more near misses than I can count in our years together. She has been through two double lung transplants, sepsis, toxicity, chronic kidney disease, diabetes, hemorrhaging, and more severe lung disease than you can shake a stick at. At this point, she is continuously balancing transplant medications, kidney condition, digestive challenges, etc.
... and she still hikes my butt into the ground every time we go out!
While there is still no cure for CF the CFF has made great progress in helping those with CF live with the disease, and reduce the impacts on those people and their families. However, there are still many whom the current treatments do not help. There are those, like Sara, who will spend the rest of their lives managing the complications of living with the consequences of having had a lung transplant (not that I'm complaining!)
I know that much of the research that CFF conducts will not be applicable in Sara's lifetime. Despite that, I hike so that some future Sara can also hike her husband's butt into the ground.
This September, after being unable to participate for the last 3 years, we will hike a literal marathon in a single day. We will start at 3 in the morning, hiking by headlamps, and finish sometime in the afternoon. It isn't pretty (right down to my barfing at the 21 mile point last time), but it is worth it. If you can contribute to the cause, I would greatly appreciate it.
Thank you.
- had a life expectancy of 12 years when she was born
- was 17 years old when we met
- was 25 years old when we got married, at which time we hoped to have five or ten years together
- was 29 when we adopted our first daughter
- was 34 when we adopted our second daughter
- has seen both daughters through high school, and the first one through college
- will be celebrating our 29th wedding anniversary with me this year
- has lived more than four times her life expectancy, and
- ... still hikes my butt into the ground every damn time we go out!
It has not been an easy journey. There have been more near misses than I can count in our years together. She has been through two double lung transplants, sepsis, toxicity, chronic kidney disease, diabetes, hemorrhaging, and more severe lung disease than you can shake a stick at. At this point, she is continuously balancing transplant medications, kidney condition, digestive challenges, etc.
... and she still hikes my butt into the ground every time we go out!
While there is still no cure for CF the CFF has made great progress in helping those with CF live with the disease, and reduce the impacts on those people and their families. However, there are still many whom the current treatments do not help. There are those, like Sara, who will spend the rest of their lives managing the complications of living with the consequences of having had a lung transplant (not that I'm complaining!)
I know that much of the research that CFF conducts will not be applicable in Sara's lifetime. Despite that, I hike so that some future Sara can also hike her husband's butt into the ground.
This September, after being unable to participate for the last 3 years, we will hike a literal marathon in a single day. We will start at 3 in the morning, hiking by headlamps, and finish sometime in the afternoon. It isn't pretty (right down to my barfing at the 21 mile point last time), but it is worth it. If you can contribute to the cause, I would greatly appreciate it.
Thank you.
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