Sarah Lovas
LET'S DO THIS!!!!!
We are so honored to say this is our THIRD YEAR participating in this amazing event and alongside so many amazing hikers!!! This past year has brought us many joys and also many challenges with Jacob's Cystic Fibrosis. Last year, we were pulled from the main event at the last minute by a surprise hospitalization, as Jacob experienced a rare complication with his medication. What can I say, the kid just likes to be different! He came back strong and a month later he traveled on his Make-A-Wish birthday trip in Disney World, spent most of winter taking trips to the local trampoline park, and even started Brazilian Jiu Jitsu, which has proven to be a phenomenal demonstration of mental and physical endurance for him. Last March, he hit a personal best for his lung function....then had his first long term hospital admission for IV antibiotics in June when it dipped well below his team's comfort level.
Admittedly, it is hard not to feel like we have entered a new era in managing his disease. At only 7 years old, Jacob is now becoming more aware of the limitations that come with a chronic, life-threatening illness, and how isolating they can be. Even with hours upon hours of breathing treatments, closely following infection protocols, and basically doing "all the right things," there comes a point where there is only so much you can do. It is a relentless waltz, where you can be so deeply exhausted, but even on the hardest day you are grateful, because you know there's a chance that one day you will envy this struggle, and yearn for its simplicity. THIS is Jacob's battle, and we cannot let him fight it alone. He deserves easy days, as many as possible.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m hiking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
We are so honored to say this is our THIRD YEAR participating in this amazing event and alongside so many amazing hikers!!! This past year has brought us many joys and also many challenges with Jacob's Cystic Fibrosis. Last year, we were pulled from the main event at the last minute by a surprise hospitalization, as Jacob experienced a rare complication with his medication. What can I say, the kid just likes to be different! He came back strong and a month later he traveled on his Make-A-Wish birthday trip in Disney World, spent most of winter taking trips to the local trampoline park, and even started Brazilian Jiu Jitsu, which has proven to be a phenomenal demonstration of mental and physical endurance for him. Last March, he hit a personal best for his lung function....then had his first long term hospital admission for IV antibiotics in June when it dipped well below his team's comfort level.
Admittedly, it is hard not to feel like we have entered a new era in managing his disease. At only 7 years old, Jacob is now becoming more aware of the limitations that come with a chronic, life-threatening illness, and how isolating they can be. Even with hours upon hours of breathing treatments, closely following infection protocols, and basically doing "all the right things," there comes a point where there is only so much you can do. It is a relentless waltz, where you can be so deeply exhausted, but even on the hardest day you are grateful, because you know there's a chance that one day you will envy this struggle, and yearn for its simplicity. THIS is Jacob's battle, and we cannot let him fight it alone. He deserves easy days, as many as possible.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m hiking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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