When our baby boy, Franklin, was 8 days old we received a call that his newborn blood screen was abnormal. We were confused, shocked, and devastated as we began to navigate his cystic fibrosis diagnosis. 

We quickly started with daily treatments to include enzymes before every feeding, an inhaler, and chest therapy. When Franklin is 2 years old, he will begin taking what many call the “miracle drug” for CF. Though we spend quite a bit of time on his treatments and he is still vulnerable to getting sick, we are so grateful that CF care has come so far even in just the last handful of years. Despite his cystic fibrosis diagnosis, Franklin has such a bright future ahead of him!

Our hearts break when we think about the many, many people whose lives have been cut way too short by CF. We are grateful for the individuals and families affected by CF who came before us, however, as their advocacy for the CF community and fundraising to support research has made cystic fibrosis a much more manageable condition today. Unfortunately, not all CF patients have medications available to target their specific gene mutations, and there is no cure to cystic fibrosis. We are participating in the Cystic Fibrosis Foundation’s Great Strides walk to raise awareness and funds to support research. We would love for you to join us, and we are thankful for everyone’s prayers and support! 

“The Spirit of God has made me; the breath of the Almighty gives me life.”  -Job 33:4.