My Great Strides Story
Juliann Davis
My name is Juliann Davis, and I was diagnosed with cystic fibrosis (CF) as a baby. Growing up with CF meant a daily routine of medications, treatments, and hospital visits, which shaped much of my childhood. My sister Jessica, who was also diagnosed with CF, and I faced these challenges together. Despite missing out on typical childhood experiences, I learned resilience early on and adapted to the realities of CF. Serious infections like pseudomonas and MAC brought more complications as I got older, but my family and I fought through it. In 2019, my life changed when I started taking Trikafta, a treatment that dramatically improved my health and allowed me to pursue dreams I never thought possible.
Thanks to Trikafta, I’ve been able to focus on my career in marketing and experience life as a mother to my daughter, Brooklyn, a dream I fulfilled in 2022. Alongside me on this journey is my husband, Richard, my best friend and the rock of our family. He has supported me through every tough moment, especially during times when I am sick. His care and love are an incredible source of strength. Balancing my health, work, and motherhood comes with challenges, but I am grateful to have Richard by my side. My sister passed in 2021 after a tough struggle with CF after her double lung transplant. I honor Jessica’s memory by staying active in the CF community. Living with CF has shaped my life, but it hasn’t defined it entirely. I continue to push forward, inspired by Jessica’s strength and supported by Richard’s unwavering love.
Making a Difference…
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Comments