Judah was diagnosed with Cystic Fibrosis just after he was a month old. For Judah, the results of a sweat test were what confirmed his diagnosis. A number greater than 60 means = CF diagnosis. Between 30-60 means CF is possible. Less than 30 means CF diagnosis is unlikely. Judah’s results in 2013 were 97. After Judah started up Trikafta again, the clinic re-tested his sweat chloride. I remember sitting with Judah as we saw that number. 

33

Because of this medication, his whole body is responding differently. 💜 Hope.

And still, Judah had one of his most challenging years. He was admitted to Doernbecher in the summer of last year, one of his longest stays, and left “not better.” The summer felt like ticking time bomb, just waiting for Judah to head back into Doernbecher. Maybe this is what it feels like for Judah on the daily, and I hope for him a future where he’s not waiting for the other shoe to drop, where his differences bring him strength instead of isolation. Judah didn’t have to go back in, and he has been able to maintain.

With medications, come side effects to watch out for. Medications bring hope and unknowns. I have always hated unknowns, but I have become familiar with them. 

This year, when I walk beside Judah, I walk for a reality where CF is secondary, where the treatments and pills are minimal or not needed. I walk for all the things he carries that he never says. I walk to demonstrate that I will never stop showing up alongside this sweet boy, for the CF challenges or the normal 12 year old boy ones!

Judah started middle school this year. Here we go! 😬😁 
Every change brings new challenges and adventures. Judah tried wrestling, and plans to do some other sports here soon. Judah loves big and has this sweet and kinda fierce loyalty to those close to him. Hope you will join us this year!
 

We invite you to take part in Great Strides by joining our team. This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie, but the important impact we are making together.

While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.

Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?