Bonnie Moore
Wow, welcome 2025! Can you believe it's already March? So it's already been a year since my last email to you all. The Cystic Fibrosis Foundations Xtreme Hike is going to be a week earlier this year. The hike will take place on May 31, 2025. As usual, the hike will be in the Berkshires and this year will include a hike over Mt Greylock at sunrise. We will hike 26 miles in one day to raise money to FIND A CURE FOR CF.
I started this yearly hike 11 years ago after meeting the adorable young Miss Ellie. Ellie was then a 9 year old girl from Norton MA.
Ellie has been fortunate to be born at a time where the research that has been done to date has resulted in some medications which reduce the amount of treatments Ellie must complete each day (half as many). She has also been able to attend college, she is a Sophomore at
People with CF have compromised immune systems and declining lung function They MUST stay 6ft or more away from anyone with CF or outdoors and can't be indoors with anyone outside their family during this time. Any sickness at any time can severely affect or even kill a person with CF.With this better understanding of what life with CF is like, social distancing and personal protection I would like to ask for help raising money to find a cure for CF by making a donation to the 2025 Xtreme Hike in May.
I am preparing for my 11TH year with the Xtreme hike for Cystic Fibrosis and I need help raising $5,555.55 for my fundraising goal.
I am hiking 25+/- miles in one day for Ellie Leo of Norton and the Cystic Fibrosis Foundation.
I started this yearly hike in 2015 when I met this adorable 9 year old girl fighting CF. At the time I didn't know what CF was, I didn't recognize Ellie was "sick". There are some illnesses you do not "see" on the exterior unless the person is having a bad day. I have found that no day is a good day but some are better than others. Treatments, medications, Dr's and hospitals are a regular and unavoidable part of Ellie's everyday life.
However, CFF has been by the Leo families side since Jenica's diagnosis of Ellie in the womb. Amazing medical advances can help control some of the challenges of the disease but to date still no cure. Ellie has been a trooper as long as I've known her and from 2015 to now, WOW!! What a difference a few months can make! From the first time I met Ellie at age 9, a small, cute little girl with a huge smile to a now 20 year old young WOMAN!!
I would appreciate your consideration for a donation and please feel free to share this request with others. It means so much to the young people suffering with CF and the family and friends of those who have CF!
Cystic Fibrosis is a terrible, to date non curable disease affecting the lungs and immune system of its victims. Ellie is fighting back every day and with her young determination and our help I believe she will SUCCEED! Ellie takes 20-25 pills daily, and spends over two hours each day doing breathing and shake therapies in an effort to fight this disease and prolong her life. The CF Foundation is making progress with various types of CF each year and all made possible by the funds from these events. NOW there is a new medication developed that may help Ellie's type of CF, it is new and waiting to see if it helps Ellie with her fight.
This incredible Foundation is so well organized, all of these donations go directly to finding a cure due to generous donations to cover event costs from
Team "Breathe for Ellie" has the beautiful face of Ellie and a wonderful life to fight for.I am SO appreciative of your support in helping me raise funds to find a cure for CF!
PLEASE support this fundraiser for Ellie and CFF, every donation makes a big difference! Feel free to call 508 241 1616, email blskmoai@yahoo.com or text me for any questions or comments. Some of you will not want to donate online, there is a mail in donation form available on the website. I can also send it to you or if you send me a check, made out to CFF and memo line Bonnie Moore. I will get it to CFF, even after the event.
Thank you so much in advance, for Ellie, for CFF and from myself!
My best always, Bonnie
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m hiking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
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