Bonnie Moore
Hello my friends,
Welcome 2025! Can you believe it's already April? So it's already been over a year since my last email to you all.
The Cystic Fibrosis Foundations Xtreme Hike is going to be a week earlier this year. The hike will take place on May 31, 2025. As usual, the hike will be in the Berkshires and this year will include a hike over Mt Greylock at sunrise. We will hike 26 miles in one day to raise money to FIND A CURE FOR CF.
I started this yearly hike 11 years ago, in 2015, after meeting the adorable young Miss Ellie. Ellie was then a 9 year old girl from Norton MA. At that time i didn't know what CF was, i didn't recognize Ellie was "sick". There are some illnesses you do not "see" on the exterior unless the person is having a bad day. I have found that no day is a good day but some are better than others. Treatments, medications, Doctor's and hospitals are a regular and unavoidable part of Ellie's everyday life.
However, the Cystic Fibrosis Foundation has been by the Leo families side since Jenica's diagnosis of Ellie in the womb. Amazing medical advances can help control some of the challenges of the disease but to date still no cure. Ellie has been a trooper as long as I've known her since 2015.
Fast forward to now, that cute little girl has grown into a beautiful young woman in her sophomore year of college!
Ellie has been fortunate to be born at a time where the research that has been done to date has resulted in some medications which reduce the amount of treatments Ellie must complete each day (half as many).
Cystic Fibrosis is a terrible, to date non curable disease affecting the lungs and immune system of its victims. Ellie is fighting everyday and with her determination and our help, we will SUCCEED in finding a CURE!
I would appreciate your consideration for a donation. It means so much to the young people suffering with CF or worse, dying from its persistence.
The family, friends and CFers appreciate your support and I am very grateful to be the facilitator by hiking this 25miles on May 31st for your donations. All donations go directly to finding a cure due to generous donations to cover the event costs.
The CF Foundation is making progress with new medications various types of CF and all made possible by the funds from these events. There is a new medication that may help Ellie's type of CF, we are all waiting to see if it helps Ellie with her fight. It is still not a cure but helps ease some of the CF challenges.
Team "Breathe for Ellie" has the beautiful face of Ellie and a wonderful life to fight for.
I am SO appreciative of your support in helping me raise funds to find a cure for CF!
PLEASE support this fundraiser for Ellie and CFF, every donation makes a big difference! Feel free to call 508 241 1616, email blskmoai@yahoo.com or text me for any questions or comments. Some of you will not want to donate online, there is a mail in donation form available on the website. I can also send it to you or if you send me a check, made out to CFF and memo line Bonnie Moore. I will get it to CFF, even after the event.
Thank you so much in advance, for Ellie, for CFF and from myself!
My best always, Bonnie
Welcome 2025! Can you believe it's already April? So it's already been over a year since my last email to you all.
The Cystic Fibrosis Foundations Xtreme Hike is going to be a week earlier this year. The hike will take place on May 31, 2025. As usual, the hike will be in the Berkshires and this year will include a hike over Mt Greylock at sunrise. We will hike 26 miles in one day to raise money to FIND A CURE FOR CF.
I started this yearly hike 11 years ago, in 2015, after meeting the adorable young Miss Ellie. Ellie was then a 9 year old girl from Norton MA. At that time i didn't know what CF was, i didn't recognize Ellie was "sick". There are some illnesses you do not "see" on the exterior unless the person is having a bad day. I have found that no day is a good day but some are better than others. Treatments, medications, Doctor's and hospitals are a regular and unavoidable part of Ellie's everyday life.
However, the Cystic Fibrosis Foundation has been by the Leo families side since Jenica's diagnosis of Ellie in the womb. Amazing medical advances can help control some of the challenges of the disease but to date still no cure. Ellie has been a trooper as long as I've known her since 2015.
Fast forward to now, that cute little girl has grown into a beautiful young woman in her sophomore year of college!
Ellie has been fortunate to be born at a time where the research that has been done to date has resulted in some medications which reduce the amount of treatments Ellie must complete each day (half as many).
Cystic Fibrosis is a terrible, to date non curable disease affecting the lungs and immune system of its victims. Ellie is fighting everyday and with her determination and our help, we will SUCCEED in finding a CURE!
I would appreciate your consideration for a donation. It means so much to the young people suffering with CF or worse, dying from its persistence.
The family, friends and CFers appreciate your support and I am very grateful to be the facilitator by hiking this 25miles on May 31st for your donations. All donations go directly to finding a cure due to generous donations to cover the event costs.
The CF Foundation is making progress with new medications various types of CF and all made possible by the funds from these events. There is a new medication that may help Ellie's type of CF, we are all waiting to see if it helps Ellie with her fight. It is still not a cure but helps ease some of the CF challenges.
Team "Breathe for Ellie" has the beautiful face of Ellie and a wonderful life to fight for.
I am SO appreciative of your support in helping me raise funds to find a cure for CF!
PLEASE support this fundraiser for Ellie and CFF, every donation makes a big difference! Feel free to call 508 241 1616, email blskmoai@yahoo.com or text me for any questions or comments. Some of you will not want to donate online, there is a mail in donation form available on the website. I can also send it to you or if you send me a check, made out to CFF and memo line Bonnie Moore. I will get it to CFF, even after the event.
Thank you so much in advance, for Ellie, for CFF and from myself!
My best always, Bonnie
Comments