Hello friends and family,

Patrick’s Posse will hit the CF Xtreme Hike trail on May 31st for another (anything but) stroll in the woods to raise funds for the Cystic Fibrosis Foundation. This one-day, 26+ miles, 5000K elevation hike leads 60 hikers up, down, and around Mt. Greylock to raise funds for the CF Foundation. 

CF is a genetic, life shortening disease that devastates the lungs, pancreas, and other vital organs.  CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.   

As you know, we have been blessed with significant advances for our Patrick and the CF community since our first CF hike in 2013. The funds we have raised have had a direct impact on the scientific research and the development of new treatments available. Patrick has benefited from many of these including the breakthrough CF modulator Trikafta that he started in December of 2019. Since then, Patrick’s health has been exceptional and his future brighter than ever.

Although there is much to celebrate, we are not out of the woods just yet. Why we continue to look for your support:

• Life expectancy for CF patients has vastly improved but we know we can further improve this.
• CF modulators have been life changing for so many yet there are countless individuals, many of them our CF friends and families, who do not yet have a treatment to address their specific CF mutation.
• Many CF patients continue to battle lung infections resulting in permanent lung damage. Research on how best to prevent/fight infections is critical.
• And most importantly there is still NO cure for CF, only treatments.

We truly appreciate the generosity so many of you have shown year after year and hope that we can once again count on your support. Whether you are a repeat supporter, or new to our cause, we appreciate any and all donations no matter the size. 

Thank you!
Jim, Diane, Elizabeth & Patrick