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Hiking For A Life I Wasn’t Promised

Madison Culver

Fundraising for 15th Annual Xtreme Hike Massachusetts 2026

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Madison Culver

I was diagnosed with cystic fibrosis at just 18 months old. At the time, my parents were told my life expectancy was 19 years and to prepare for a future that might never include college, a career, or motherhood. Today, I hold a master's degree, work as a nurse practitioner, and am raising a little boy who is my whole world. None of that was guaranteed.

CF has shaped every chapter of my life. I grew up in and out of hospitals, lost my youngest brother Bailey - who also had CF - at just four years old, and have faced multiple life-threatening lung infections as an adult. There were seasons when survival wasn't promised, when treatment was brutal, and when the future felt painfully uncertain.

I started hiking during one of those seasons - not because it was easy, but because I needed something that reminded me I was still strong, still alive, and still capable of choosing hope. Step by step, the mountains became my therapy, my training ground, and my proof that my body - even with CF - could do hard things.

Thanks to research funded by the Cystic Fibrosis Foundation, treatments have changed dramatically. Medications that didn't exist when I was born now allow me to breathe easier, work, hike, and be the mom I dreamed of becoming. But not everyone with CF benefits from these therapies yet - and that's why this work isn't finished.

I'm hiking this year for myself, for my brother, for my friends living with CF, for those we've lost, and for my son - so I can keep showing up for him for decades to come.

Every mile I walk and every dollar raised brings us closer to a future where CF truly stands for Cure Found.

Thank you for believing in that future with me - and for helping me climb toward it, one step at a time.

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.