I hike for my niece, Norah.
 

Norah was born with Cystic Fibrosis just 12 years ago. At the time of her birth, the life expectancy for her was only 37 years. Because of advances in research, treatment, and medications, that number has risen into her 50s. That progress is nothing short of remarkable, and it’s the direct result of people showing up, funding research, and refusing to accept limits.
 

Cystic Fibrosis is a genetic disease that primarily affects the lungs and digestive system. Thick, sticky mucus builds up in the lungs, making it difficult to breathe and leading to chronic infections. It also interferes with the body’s ability to digest food properly. There is no cure.
 

Norah’s daily reality includes taking upwards of 20 pills a day and completing two chest and respiratory therapy sessions every single day just to keep her lungs clear and functioning. This is her normal. No days off.
 

I hike not only for Norah, but for everyone living with CF.
 

While treatments have come a long way, there is still a long road ahead. Not everyone responds to the medications currently available, and many are still waiting for options that work for them. Until those options exist, this fight isn’t finished.
 

I hike for longer lives.
I hike for better treatments.
I hike for the hope that someday CF will stand for Cure Found.
 

And yes, my legs will burn. But that’s nothing compared to what those with CF face every day.