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My Breathe Team Story

Ashley Miller

Fundraising for 2026 Walt Disney World Marathon

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Ashley Miller

In November of 2023 I found out I was having twins. Flash forward to July 12th 2024, I got to hold my beautiful twins. When a baby is born they do a blood test at 24 hours old. My sweet beautiful girl had a perfect genetic testing. My beautiful boy however showed he is a carrier for CF. My husband and I had no idea what CF really ment for how life would be. We got the test results for him being a carrier at maybe 2 weeks old. The next few weeks was full of waiting, wondering, hoping, praying, and researching. The day came for his sweat test. Opening the results I was so happy to learn he was only a carrier and did not actually have CF but now what did that mean? The results left us with more questions and more research. Although he is only a carrier he can still have future generations that are positive if he is not careful. 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m running to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$25
raised of $2,250 goal
 

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.