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My Team Breathe Story

Leonard Miller

Fundraising for 2026 Walt Disney World Marathon

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Leonard Miller

July 2024 we got news that our son had a abnormal genetic screening. We had no idea what CF was or how he got the gene.  We had so many questions, and concerns. What were the next steps, and "what if"?  We found out a lot of information, and It turns out that in order for a child to carry the gene one of the parents has to pass the gene.  If both parents pass  this gene then the child could have CF.  My wife was tested and was negative for the gene which means I must be a carrier and passed it to him.   Although he doesn’t have full CF, he is a carrier, and if he were to have children with someone else who carries the gene they could have a child with CF.     We want to do all we can to find a cure.  

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m running to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
APR
14

My first 5K, might as well check off milestones along the way 😁

Each day taking time to get ready, and making the time

MAR
18

Kicking off finding a cure for CF by signing up for a run. Training for a marathon at 45 years old. I’m motivated and can do it. Feeling good so far😁

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$125
raised of $2,250 goal
 

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.