Walk with us so “Owen will Overcome!” Cystic Fibrosis
Owen will Overcome!
On Wednesday January 4th, Owen’s diagnosis for Cystic Fibrosis was confirmed using a sweat test. We had an appointment at the CF clinic through CHKD in Norfolk that Friday and met with a Pulmonologist, Social Worker/Mental Health Coordinator, Dietitian, along with other doctors and nurses who are a part of our care team. We were given an incredible amount of information, but the ultimate takeaway was that while this disease was once considered terminal, so many advancements have been made that people with this diagnosis are now able to live full lives.
He gets daily breathing treatments with a nebulizer and undergoes vest therapy to manage his health. This condition will not impact his quality of life. This kid has been through so much already, but he is stronger than we could have anticipated. We will do anything and everything in our power for this spunky kid. We ask that anyone interested in seeking more information refer to the Cystic Fibrosis Foundation website (www.cff.org) for the most accurate data.
We would love if you would consider participating in one of the Great Strides walks for Cystic Fibrosis to bring awareness and help find a cure, as there currently is none.
Join team “Owen will Overcome!” and walk with us in Virginia Beach on April 26th, 2025. We would be so appreciative of your support. Bring your kids, your dogs, the whole family! Let’s cure CF!
1
Comments