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My CF Cycle for Life Story

Jenna Reed

Fundraising for 28th Annual Massachusetts CF Cycle for Life

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Jenna Reed

Hi! We are a group of friends and family who were blessed to be apart of Haylee's story. 

Haylee, was a beautiful soul. Her personality resembled the sunshine. Always warming up any room she walked into with her smile, kindness, and ability to make anyone feel loved. 

What wasn't always apparent to the eye, was that Haylee was fighting a lifelong battle against Cystic Fibrosis. In the past 4 years of her life, she has spent majority of her time inpatient at Mass General Hospital. She had what would be considered CF related liver disease- causing her liver to fail completely. In September of 2023, she received a liver transplant. After transplant she had a short few months of normalcy before CF took over her new liver as well. Haylee fought an endless, resilient battle for almost 2 years. 

Haylee peacefully passed away in August of 2025, one day after turning 28 years old. This however, is far from the end of her story. 

My name is Jenna. I am a 24 year old CF patient, and I am Haylee's sister. Our team "Haylee's Legacy" is a group of my closest friends who help me share Haylee's story. 

We are fundraising to continue the research of CF and ways to treat/ cure CF before it progresses to other organs. I know, if Haylee was still here today, she would be fighting for no other CF patient to endure what she has. It is our job, to ensure that Haylee's values, live on. 

Please consider donating to our team and helping us carry on Haylee's legacy. 


 
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Saturday mornings on the bike path!

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25

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$21,985
raised of $18,500 goal
 

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Team Haylee's Legacy

$29,431.48
$26,500

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.