My CF Cycle for Life Story
Kerin Gregory
Fundraising for 29th Annual CF Cycle for Life Massachusetts 2026
Kerin Gregory
Back in 2010, I was a new mom - tired, adjusting, clueless.
A geneticist explained to us that Vivien was born with cystic fibrosis and nothing was ever the same. There was no accurate prediction of what her symptoms may be. The median life expectancy was the age I was at that very moment. The feeling was helpless, heavy, anxious, desperate. My brain kept searching for solutions - ways to protect her. Luckily, through the Cystic Fibrosis Foundation, we found people with big hearts willing to share their experience and events that empowered us to feel a sense of momentum through fundraising for research. So much has changed in 15 years. Vivien will soon try a modulator medication - one in a series from Vertex - that treats the underlying defect causing CF. We ride to support Viv and CFers who still need options - the meds are not one-size-treats-all. I ride so she knows I'll always be here to uplift her. And the support of family and friends not only humbles me but reminds me that I am not alone in this challenge.
Thank you for reading this blurb and for any donation you may make...I am so grateful. Along with Vivien, her 9 year old sister Ivy and I will ride 15 miles on the trails of Massachusetts in August to raise funds to continue the work in the lab that is needed for this CF mission.
~Kerin
Stats of the CF Backstory
-courtesy of AI Overview Google search-
A geneticist explained to us that Vivien was born with cystic fibrosis and nothing was ever the same. There was no accurate prediction of what her symptoms may be. The median life expectancy was the age I was at that very moment. The feeling was helpless, heavy, anxious, desperate. My brain kept searching for solutions - ways to protect her. Luckily, through the Cystic Fibrosis Foundation, we found people with big hearts willing to share their experience and events that empowered us to feel a sense of momentum through fundraising for research. So much has changed in 15 years. Vivien will soon try a modulator medication - one in a series from Vertex - that treats the underlying defect causing CF. We ride to support Viv and CFers who still need options - the meds are not one-size-treats-all. I ride so she knows I'll always be here to uplift her. And the support of family and friends not only humbles me but reminds me that I am not alone in this challenge.
Thank you for reading this blurb and for any donation you may make...I am so grateful. Along with Vivien, her 9 year old sister Ivy and I will ride 15 miles on the trails of Massachusetts in August to raise funds to continue the work in the lab that is needed for this CF mission.
~Kerin
Stats of the CF Backstory
-courtesy of AI Overview Google search-
The predicted median age of survival for a baby born with cystic fibrosis today is 66 years, according to recent patient registry data. [1]
Survival Milestones
- Newborns: Predicted median survival reaches up to 66 years for individuals born in recent cohorts, meaning half are expected to live past this age.
- Adult Population: More than 60% of people living with cystic fibrosis in the United States are now 18 years of age or older.
Progress Over Time
- Historical Context: In the 1980s, few children diagnosed with the condition survived into adulthood.
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