My Cystic Fibrosis Cycle for Life Story
Nikki Levin
Fundraising for 28th Annual Massachusetts CF Cycle for Life
Nikki Levin
Dear Friends and Family,
Joel and I are excited to announce that we are going to ride in the CF Cycle for Life Ride this fall to raise money for cystic fibrosis research.
CF is a genetic, life-shortening disease that affects the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
CF is one of the most common single-gene genetic disorders in the United States, affecting about 40,000 people. Roughly 1 in 40 Americans is a carrier (has one abnormal allele), and about 1 in 3000 infants is born with the disease.
Until recently, people born with CF suffered from severe lung and pancreatic disease and often died very young. However, the CF Foundation has sponsored research that identified the gene responsible for the disorder and has led to targeted treatments that now can help more than 90% of people born with the condition!
However, the drugs currently available do not work for everyone with CF, so the hunt for cures is not over. We feel if is very important to continue funding CF research until we have treatments for everyone affected.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Joel and I are excited to announce that we are going to ride in the CF Cycle for Life Ride this fall to raise money for cystic fibrosis research.
CF is a genetic, life-shortening disease that affects the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
CF is one of the most common single-gene genetic disorders in the United States, affecting about 40,000 people. Roughly 1 in 40 Americans is a carrier (has one abnormal allele), and about 1 in 3000 infants is born with the disease.
Until recently, people born with CF suffered from severe lung and pancreatic disease and often died very young. However, the CF Foundation has sponsored research that identified the gene responsible for the disorder and has led to targeted treatments that now can help more than 90% of people born with the condition!
However, the drugs currently available do not work for everyone with CF, so the hunt for cures is not over. We feel if is very important to continue funding CF research until we have treatments for everyone affected.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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