My CF Cycle for Life Story
Jacquie Holden
Fundraising for 29th Annual CF Cycle for Life Massachusetts 2026
Jacquie Holden
30 miles soon!! 🚲 I am incredibly fortunate to have been a part of Haylee's story, and to be able to continue to carry her legacy on alongside my closest friends.
Haylee was a beautiful soul. Her personality resembled the sunshine. Always warming up any room she walked into with her smile, kindness, and ability to make anyone feel loved.
What wasn't always apparent to the eye, was that Haylee was fighting a lifelong battle against Cystic Fibrosis. In the last 4 years of her life, she spent majority of her time inpatient at Mass General Hospital. She had what would be considered CF related liver disease- causing her liver to fail completely. In September of 2023, she received a liver transplant. After transplant she had a short few months of normalcy before CF took over her new liver as well. Haylee fought an endless, resilient battle for almost 2 years.
Haylee peacefully passed away in August of 2025, one day after turning 28 years old. This however, is far from the end of her story.
We are fundraising to continue the research of CF and ways to treat/ cure CF before it progresses to other organs. Jenna, Haylee's younger sister and my best friend since 2nd grade, also is a CF patient. We are not only raising funds to carry Haylee's legacy on, but also to support Jenna, who is one of the strongest humans I know.
Haylee was a beautiful soul. Her personality resembled the sunshine. Always warming up any room she walked into with her smile, kindness, and ability to make anyone feel loved.
What wasn't always apparent to the eye, was that Haylee was fighting a lifelong battle against Cystic Fibrosis. In the last 4 years of her life, she spent majority of her time inpatient at Mass General Hospital. She had what would be considered CF related liver disease- causing her liver to fail completely. In September of 2023, she received a liver transplant. After transplant she had a short few months of normalcy before CF took over her new liver as well. Haylee fought an endless, resilient battle for almost 2 years.
Haylee peacefully passed away in August of 2025, one day after turning 28 years old. This however, is far from the end of her story.
We are fundraising to continue the research of CF and ways to treat/ cure CF before it progresses to other organs. Jenna, Haylee's younger sister and my best friend since 2nd grade, also is a CF patient. We are not only raising funds to carry Haylee's legacy on, but also to support Jenna, who is one of the strongest humans I know.
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