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My Xtreme Hike Story

Susan Lohsen

Fundraising for Metro DC Xtreme Hike

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Susan Lohsen

Thank you for helping me help my daughter, Elena, fight CF.  As you have read in my email, Elena had a tough year since the 2024 Xtreme Hike. I am happy to report that her liver healed allowing her to get back on a CF modulator. A modulator fights CF at the cellular level by reopening closed chloride channels. As soon as Elena got back on the modulator, she coughed out all the gunk clogging up her lungs and now feels 100% better. She isn't coughing any more and can run again! 

The CF Foundation develops CF modulators along with many other CF drugs and therapies that ease symptoms and increase life spans.  Without the CF Foundation, Elena would not have lived to age 3.  Please, help me thank the Foundation for their good work with a donation to our Xtreme Hike team.

If you'd like to join our 24-mile hike, please send me an email or text. I'll talk you through the process.

God bless you.

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$1,400
raised of $15,000 goal
 

Achievements

Leader

Team Elena's Entourage

$1,400
$5,000

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.