Walk with our team to Cure Cystic Fibrosis
Coffee Strong
Fundraising for Metro Detroit Great Strides 2026
Coffee Strong
Team Coffee Strong is participating in our 5th Great Strides Fundraiser and we've added another little warrior to our team this year!
We encourage all of our family/friends to join us in walking for a cure on May 3rd at the Detroit Zoo. By walking with us, donating to our team, and spreading awareness of CF, you will be making a direct impact in Lennon and JJ's life and all those who live with Cystic Fibrosis.
Lennon is a very active and happy almost 5 year old living with Cystic Fibrosis!
She lives a very normal life and is able to do everything that other kids her age can do, but she works a little harder to stay healthy so she can continue to do these things! She does 2 hours of breathing treatments everyday (4 hours when she's sick), She takes pancreatic enzymes every time she eats, and she takes other medications, like modulators, to help her body function as it should.
Lennon is lucky enough to qualify for Trikafta, but it is not a cure and not everyone is eligible to take this medication.
JJ was born on 06/07/2025 with Cystic Fibrosis. He is a very smiley boy who loves to watch his siblings play. Due to early testing JJ was exposed to Trikafta in utero and was born pancreatic sufficient. Unfortunately, he lost pancreatic sufficiency when he was a few months old, so his team prescribed him his own Trikafta off label. JJ has the same routine as Lennon and has been tolerating his treatments and medications well. He is doing great and growing like a weed!
Trikafta is an incredible drug, but it is not available to everyone with CF and it is still NOT a cure. We dream of a day where Lennon and JJ don't have to wake up and do treatments, take medication, or attend long doctor's visits. While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
We encourage all of our family/friends to join us in walking for a cure on May 3rd at the Detroit Zoo. By walking with us, donating to our team, and spreading awareness of CF, you will be making a direct impact in Lennon and JJ's life and all those who live with Cystic Fibrosis.
Lennon is a very active and happy almost 5 year old living with Cystic Fibrosis!
She lives a very normal life and is able to do everything that other kids her age can do, but she works a little harder to stay healthy so she can continue to do these things! She does 2 hours of breathing treatments everyday (4 hours when she's sick), She takes pancreatic enzymes every time she eats, and she takes other medications, like modulators, to help her body function as it should.
Lennon is lucky enough to qualify for Trikafta, but it is not a cure and not everyone is eligible to take this medication.
JJ was born on 06/07/2025 with Cystic Fibrosis. He is a very smiley boy who loves to watch his siblings play. Due to early testing JJ was exposed to Trikafta in utero and was born pancreatic sufficient. Unfortunately, he lost pancreatic sufficiency when he was a few months old, so his team prescribed him his own Trikafta off label. JJ has the same routine as Lennon and has been tolerating his treatments and medications well. He is doing great and growing like a weed!
Trikafta is an incredible drug, but it is not available to everyone with CF and it is still NOT a cure. We dream of a day where Lennon and JJ don't have to wake up and do treatments, take medication, or attend long doctor's visits. While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
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