My Great Strides Story
Joyce Coffee
Fundraising for Metro Detroit Great Strides 2026
Joyce Coffee
This will be our 5th year participating in the Great Strides Fundraiser to support our grandchildren, our Coffee Strong team, and the Cystic Fibrosis Foundation.
Cystic Fibrosis (CF) is a genetic disease that affects the lungs, pancreas and other vital organs.
We will be walking to raise funds for a cure this year on Sunday, May 3rd, 2026, at the Detroit Zoo.
We encourage our family and friends to help support us by donating to our team, joining us in the walk, and spreading awareness of CF.
You will be making a direct impact in our grandchildren's lives and all those who live with CF.
We now have three beautiful grandchildren! Lennon, Emmett and JJ.
Lennon will soon be 5 years old! Emmett is 2 and JJ will be 1 in June.
They are all such happy and active little ones!
Lennon and JJ are our CF warriors.
Lennon was diagnosed with Cystic Fibrosis when she was 2 weeks old. She leads a very active normal life and is able to do everything other kids her age can do, but she has to work a little harder to stay healthy so she can do those things! She does 2 hours of breathing treatments everyday (4 hours when she's sick). She has to take pancreatic enzymes every time she eats and takes other medications as well, like modulators, to help her body function like it should. Lennon is lucky enough to qualify for Trikafta, but it is not a cure and not everyone is eligible to take this medication.
JJ was born in June 2025 with Cystic Fibrosis. He is such a smiley boy and loves to watch his siblings play! Due to early testing, he was exposed to Trikafta in utero and was born pancreatic sufficient. However, he lost pancreatic sufficiency when he was a few months old, so his team prescribed him his own Trikafta off label. JJ has the same routine as Lennon and has been tolerating his treatments and medications well. He is doing great and growing like a weed!
Trikafta is an incredible drug, but it is not available to everyone with CF and it is still NOT a cure. We dream of a day where Lennon and JJ don't have to wake up and do treatments, take medication, or attend long doctor's visits.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure.
This will require time, funding and persistence.
By donating to my fundraising goal, you can help advance the research and science needed to drive our shared dream forward -
a cure for everyone with CF.
#untilcfmeanscurefound
#coffeestrong
Cystic Fibrosis (CF) is a genetic disease that affects the lungs, pancreas and other vital organs.
We will be walking to raise funds for a cure this year on Sunday, May 3rd, 2026, at the Detroit Zoo.
We encourage our family and friends to help support us by donating to our team, joining us in the walk, and spreading awareness of CF.
You will be making a direct impact in our grandchildren's lives and all those who live with CF.
We now have three beautiful grandchildren! Lennon, Emmett and JJ.
Lennon will soon be 5 years old! Emmett is 2 and JJ will be 1 in June.
They are all such happy and active little ones!
Lennon and JJ are our CF warriors.
Lennon was diagnosed with Cystic Fibrosis when she was 2 weeks old. She leads a very active normal life and is able to do everything other kids her age can do, but she has to work a little harder to stay healthy so she can do those things! She does 2 hours of breathing treatments everyday (4 hours when she's sick). She has to take pancreatic enzymes every time she eats and takes other medications as well, like modulators, to help her body function like it should. Lennon is lucky enough to qualify for Trikafta, but it is not a cure and not everyone is eligible to take this medication.
JJ was born in June 2025 with Cystic Fibrosis. He is such a smiley boy and loves to watch his siblings play! Due to early testing, he was exposed to Trikafta in utero and was born pancreatic sufficient. However, he lost pancreatic sufficiency when he was a few months old, so his team prescribed him his own Trikafta off label. JJ has the same routine as Lennon and has been tolerating his treatments and medications well. He is doing great and growing like a weed!
Trikafta is an incredible drug, but it is not available to everyone with CF and it is still NOT a cure. We dream of a day where Lennon and JJ don't have to wake up and do treatments, take medication, or attend long doctor's visits.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure.
This will require time, funding and persistence.
By donating to my fundraising goal, you can help advance the research and science needed to drive our shared dream forward -
a cure for everyone with CF.
#untilcfmeanscurefound
#coffeestrong
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