Levi was born in 2019 with cystic fibrosis, just months before the world would be shaken by Covid. We were learning how to manage CF while also navigating the uncertainties of a global pandemic. As new CF parents, we were cautious and unsure at times, but we made a clear decision early on: CF would not define our family or limit how we live.

We committed to putting Levi’s health first but also to giving him a full, active life rather than keeping him in a bubble. He is growing up doing everything he enjoys, while still staying on top of his treatments and daily care.

A major milestone came when Levi turned four. Trikafta, a life-changing CF medication, was FDA approved for his age group. After starting it, Levi began to do even better—his health improved, he doesn’t need to take enzymes anymore, and he barely ever coughs.

Levi is what we call a “healthy CFer.” He continues to thrive and has never been concerned about his CF stopping him from living his best life. His diagnosis may be part of his life, but it does not define who he is or how he lives. To any new CF parents, we encourage you to live the LeviStrong way as much as you can!

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.